My day in Columbus

This has been a hard week.  I have spent a lot of time on the phone with the doctors office and insurance company.  We had all of my appointments set up for today.  I was supposed to spend the entire day in Columbus with my CT at 9:30am, MRA at 12:30pm, and appointment with surgeon at 4:30pm.  I found out Tuesday that my insurance company would not cover the MRA at the location I was scheduled.  I lost it….this was the last straw in my hip drama….I am so over it all and want it to be over.  I didn’t need another hurdle to jump over.  I ended up shutting my door in my office and crying!

I was able to pull some strings and get an MRA scheduled last minute yesterday at the hospital I work at!  I had my CT this morning and then had the rest of the day to figure out what to do….I had 7 hours to kill.  I ran around to many different stores today.

The day seemed to drag on forever….I just wanted to see Dr. Ellis and get some answers.  Dr. Ellis was running late, but Dave (his PT) came in to see me and talk through my symptoms and move my leg around.  I wasn’t on his schedule, but he heard me and wanted to check in.  He felt like my symptoms were coming from the joint, but he was interested to hear what Dr. Ellis thought.  I was Dr. Ellis’ last patient of the day.  He opened my door and had me come out to see my images.  We looked at my MRI and CT images and then we went back into my exam room so he could move my leg around.  After he moved my leg around we went back out to look at the images again.  He came to the conclusion that he thinks my capsule is torn and potentially my labrum too.  He also wants to resect my AIIS some more too.  So, basically he wants to re-scope my hip.

This will be my 4th time off work, so I have too be responsible and wait until the October due to some responsibilities at work.

Injection

If I would’ve been planning ahead I would’ve waited until after my injection to see my PT…but I didn’t have that luxury because I schedule so far in advance to get my PT’s early appointments.  Since my PT worked so hard to get my body back in working order I felt bad trying to break myself again.

For those of you who don’t know it is important to have your symptoms whenever you have a diagnostic injection.  My injection was this morning.  I decided to go for a run last night to try really flare it up.  In the past I have struggled to know for sure if all the pain went away from the injection.  I wanted to know definitively where the pain was coming from so I wanted to make sure that my hip was good and painful!  I went for my first run in forever!  I planned to do 2 miles.  I got to my mile turn around and then it all went to hell.  I ended up limping and in significant pain the rest of way back to my car (but I successfully flared up my hip).

My injection was at 9:20am.  I didn’t feel too badly this morning.  I’ve seen this doctor one other time before for an injection (and have had at least 5 other injections) so I knew what to expect.  He received a referral from my surgeon, but no notes.  He was confused as to why we were only doing a local and not a steroid too.  I explained the last 6 months!  I have had 3 steroid injections since September.  All doctors have their own recommendations as to how many and how frequently an injection should be done.  I picked his brain about what his recommendations are (every 4 months) and he agreed our best plan of attack was a diagnostic local injection with no steroids to reduce the risk of AVN.  Prior to the injection he utilized ultrasound to locate the major landmarks.  He also took the opportunity to look at the capsule and iliopsoas.  From his experience he thought the iliopsoas could be my problem, but there was no swelling this time.  He did find swelling in the joint though.

So, after I left the doctors office I decided to try and replicate my run from the previous night because that would definitely tell me where the pain is coming from.  Of course my pain of running the path behind the doctors office didn’t work out because it was pouring rain…luckily my parents only live 5 miles from the office so I went to their house to run on their treadmill before I went to work.  Surprisingly I had absolutely no pain….I guess it’s officially my joint!  So, I called Dr. Ellis’ office to see what he wanted to do next.  I heard back from them after lunch….he wants a 3D CT scan and an MRA.  I am scheduled for an all day adventure in Columbus on 7/27…starting with a 3D CT, MRA, and then an appointment with Dr. Ellis.  Hopefully I get some answers soon….I just hope it’s not surgery 😦

 

Physical Therapy

I was literally counting the hours until I got to see my PT.  I honestly could not wait to see her!  My whole entire right side was a hot mess…From my neck to my calf.

I was her first appointment on Wednesday morning…she had my hot packs set up before I even got there!  She started by needling my R trap and then my left trap.  My neck was caught and I didn’t have complete ROM so she worked on that next.  After that we moved to my hip issues.  She needled my glut, adductor, IT, etc (I lost track of where all she needled)!  She also needled my calf which didn’t twitch.  Typically I get significant twitches from my calves.  There were significant trigger points, but they were from referral pain….so they responded differently!  She then worked on my back which was way out of wack!  It took a few different techniques for her to fix it!

I completed a few table exercises, but we kept it very minimal.  I then got packed in ice and headed back to work!  We’ve gone down to one visit a week to try to save my visits in case of worst case scenario…..so I don’t see her again until next Wednesday 😦

Injection is tomorrow!

Vacation

We just got back from a family vacation to Lake Michigan.  My parents, sister, and two nephews (5, 2.5 yrs old).

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I finished my prednisone taper on our first day of vacation!  I will be honest that the prednisone did help while I was on it, but it didn’t last.  Sunday was spent at a local Farmers Market, a picnic, and a local small zoo.  On Monday we did the three Dune Challenge at the Indiana Dunes and some time at the beach.  By Tuesday morning I was miserable!  I called Dr. Ellis’ office to get an order and schedule an injection to start the diagnostic process.  The doctor that typically does my injections is out of town for a few weeks and I wouldn’t be able to get in until the end of July, so I decided to have a local doctor do the injection.

On Tuesday we went kayaking.  My parents and I all have our own kayaks which we took and my sister rented one.  My 5 year nephew sat between my legs and my 2 year old nephew sat on my sisters lap.  Half way through the paddle, my 2 year old nephew fell asleep.  The paddle was absolutely beautiful!

 

Wednesday we spent time at the beach and flew a kite.  Thursday we went to a splash pad for the boys and then the farmers market.  Friday we took the train into Chicago to Shedd’s Aquarium.  The train ride was about 1.5 hours.  The boys did well!  One of my favorite pics from the trip is my 5 year old nephew with my phone directing us where to go via google maps walking directions.  He did a fantastic job….I was suprised I didn’t have to correct him at all!!  A new generation!

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It was a busy week!  I am exhausted and my hip is sore and tired.   I spent all of Monday resting….slept in and napped on the couch! I am back to icing and e-stim again!

I can’t wait to see my PT on Wednesday!!!